Hydrocephalus Canada

Hydrocephalus Support

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Personal Support

You can contact Hydrocephalus Canada (HC) and know that we will be there to listen and support you through the daily challenges of living with hydrocephalus. We are your source for comfort and understanding, providing emotional support and information. Our staff and volunteers are empathetic having shared many similar experiences.

Having difficulty getting what you need? HC can help! When issues arise related to health care, employment, transportation, recreation, education, funding, etc. We are here to support you through the process by giving you the necessary tools to proceed on your own.


Share your experiences and knowledge through our regional support/social groups that bring people together to meet others affected by hydrocephalus. Through our Linking Program we encourage one-to-one support between individuals with similar experiences to share coping strategies.  Ask us how to get linked by calling 800-387-1575 or email us at info@hydrocephalus.ca.

Hydrocephalus Support Groups

Support groups are powered by the sharing of common experiences and concerns. They are a collective exchange where you may find answers to your individual questions. A place to find others who know what it's like, where you're not alone. This safe environment sets the stage for mutual support and encouragement, comfort, information exchange and positive feedback. This atmosphere can also provide personal growth, closer inter-personal relationships and increased self-esteem.

Hydrocephalus Canada Support Groups meet periodically as the need arises. Currently, the Association facilitates an active support group for Adults with Hydrocephalus. They meet 4 times per year by phone and in person at the Hydrocephalus Canada offices.

For upcoming Adult Hydrocephalus Support group meeting dates please visit our SB&H events calendar.

If you are willing to share in the duties of organizing a new group, SB&H will help you get started. For information on support groups in your community contact Steve Kean, Programs & Services Coordinator at 800-387-1575 ext. 226.

Community Discussion Forum

For online peer support visit SB&H's  Discussion Forum.   This is your opportunity to connect with other adults, parents or caregivers from around the globe.  This is a free service and an easy way to network, talk about concerns and share information in a monitored setting.