Hydrocephalus Canada

Adult Support

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Personal Support

You can contact SB&H and know that we will be there to listen and support you through the daily challenges of living with spina bifida and/or hydrocephalus. Let us be a source for comfort and understanding, providing emotional support and information. Our staff and volunteers are empathetic, sharing your experiences. 

Having difficulty getting what you need?

SB&H can help! When issues arise related to health care, employment, transportation, recreation, education, funding, etc. We are here to support you through the process, whether by acting on your behalf or giving you the necessary tools to proceed on your own.


Personal Story "Challenges in the Workplace"
True stories from those who have been there. By Mary J. Dufton - reprinted from Current Magazine, Summer 1997.  Read more...

Adult Connections-linking program

Through our Linking Program we facilitate one-to-one support between individuals with similar experiences to share coping strategies. SB&H can connect you with adult volunteers living with spina bifida and/or hydrocephalus who are available to listen and support you. They have experienced similar emotions to what you may now be feeling. Talking to someone could be the missing link in your search for creative solutions. It is helpful to know that other individuals have faced similar circumstances and learned to cope. A link can also provide important social contacts or simply someone to listen.

It's easy to get linked. Get connected... Join our Linking Program! For more information please contact SB&H at 1-800-387-1575 or email provincial@sbhao.on.ca

Online Discussion Forum

Online peer support is available through the SB&H website.  This is your opportunity to connect with other adults from around the globe.  The forum is an easy way to network, talk about concerns and share information in a monitored setting. 

To register for the SB&H Online Discussion Form click here.

Member Blogs & Online Groups

These blogs and groups are listed for information purposes only. SB&H does not provide or endorse their content.

Connect with adult members living with spina bifida and/or hydrocephalus through their blogs, Facebook groups and personal websites. If you are an SB&H member and have your own online presence contact us about adding a link to our list.

Troy's Hydrocephalus Page
Chad Journey with Spina Bifida Blog


Adult Support Groups

Share your experiences and knowledge through our regional support/social groups that bring people together to meet others affected by spina bifida and hydrocephalus.

Support groups are powered by the sharing of common experiences and concerns. A collective exchange where you may find answers to your individual needs. A place to find others who know what it's like, where you're not alone. This safe environment sets the stage for mutual support and encouragement, comfort, information exchange and positive feedback. This atmosphere can also provide personal growth, closer inter-personal relationships and increased self-esteem.

SB&H Adult Support Groups meet periodically as the need arises. Currently, the Association facilitates an active support group for Adults with Hydrocephalus. They meet on the last Wednesday of each month by phone and in person at the SB&H office.  Visit our events calendar for dates and times.                               
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Taster's Club

"Taster's Club" is a monthly social gathering coordinated by SB&H where individuals with spina bifida and/or hydrocephalus can share a taste of food, fun and friendship!! SB&H has Taster's Clubs running in Huron County, Ottawa and Toronto.  For dates, times and locations, visit our events calendar and look for Taster's Club Listings.

To start a "Taster's Club" in your community, call 800-387-1575 or email Steve Kean at skean@sbhao.on.ca.

Taster's Club Questions and Answers (PDF)

Adult Resources

Resource Centre - SB&H has hundreds of books, newsletters, video and audio tapes, fact sheets and articles available on spina bifida and hydrocephalus, as well as many other disability related topics. Topics of interest for adults include employment, lifestyles, general health, sexuality, bowel and bladder issues, recreation and much more. These items are available on loan, free of charge.

For more information on our Resource Lending Library visit our Online Resource Centre

Information Packages - Looking for specific information? SB&H can provide up-to-date, comprehensive and easy to read materials on medical issues, secondary conditions, financial assistance, coping, employment, Ontario Disability Support Program and many other areas of interest for adults. Customized packages can be prepared for you on such topics as pregnancy and spina bifida and/or hydrocephalus, prevention of neural tube defects (NTDs), and latex allergies etc. Just make a request and we will try our best to locate the materials for you.
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Complimentary Resources

As a member of SB&H you will receive the following complimentary publications:

Current Magazine - the magazine & newsletter of SB&H 
Adult Information Kit on spina bifida and/or hydrocephalus
Heath Guide for Adults Living with Spina Bifida

If you are not a member of SB&H, we urge you to sign up today! 

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