Hydrocephalus Canada

"Getting You There" - A Transition Planning Toolkit

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Getting You There is a program designed to assist you as well as other teens and young adults who have spina bifida and/or hydrocephalus (sb/h) with transitions. In many ways, your experiences will be similar to most youth without disabilities, but there are important differences that create special challenges. Most youth for example, are eager to become independent, to have the freedom to shape their own lives. You may feel the same way but might face some obstacles like being more dependent on parents and other family members. Regardless of your abilities, you have a strong need to be like other young people your age and to do the same things to fit in.

Our Getting You There Transition Toolkit  contains tools to guide and assist you as you work to achieve your personal goals. These tools were designed to help you to understand, prepare and make your transition into adult centered health care, post secondary education, employment, independent living and to assist you in developing your social network.

Planning for the big changes in your life as you grow up is important for any young person. It is even more important for youth with spinabifida and/or hydrocephalus. You simply have more details to manage and a lot more needs to be in place for you to be successful. 

Use this transition toolkit to help you develop and work a plan for yourself. Follow it from beginning to end, or just use the pieces that you need. 

Transition Tools

Session 1 - Discovering me

Activity #1: Who am I?
Activity #2: Listing your dreams and goals
Activity #3: Making action plans


Session 2 - Get confident

Activity #1: Listen to self-talk
Activity #2: Positive self-talk
Activity #3: Accomplishments
Developing a good self image
How to keep your self esteem intact


Session 3 - Put yourself first

Activity #1: Why should I be assertive?
Activity #2: 
Crucial habits to develop assertiveness skills


Session 4 - Transition into adult health care

Activity #1: Managing your own health care checklist
Activity #2: MyHealth Passport
Activity #3: How to access health care as an adult
Activity #4: 
How do you prepare yourself for your first visits with new doctors?


Session 5 - School matters

Activity #1: What happens at school
Activity #2: Going to college or university


Session 6 - Role negotiation with parents

Activity #1: Negotiate your independence
Activity#2: Basic negotiation skills and information


Session 7 - Reducing Stress

Activity #1: What is stress?
Activity #2: Sorting out the sources of stress
Activity #3: Role models and stress


Session 8 - Problem Solving

Activity #1: Understanding the problem
Activity #2: Problem solving steps


Session 9 - Independent Living

How do I know I am ready?

Activity one: Daily living questionnaire - personal care
Activity two: Daily living questionnaire - cooking
Activity three: Daily living questionnaire - house work
Activity four: Daily living questionnaire - money
Activity five: Daily living questionnaire - health and safety

Activity six: Daily living questionnaire - community and leisure
Activity seven: Daily living questionnaire - travel

Activity eight: A place to live

New relationship with your parents
Time Management


Session 10 - Social Connections

Activity #1: Making social connections


Session 11 - Choosing your career

Activity #1: Find out what you like to do
Activity #2: Vocational Assessment
Activity #3: Beginning your job search
Activity #4: 
Do you know your skills
Activity #5: Resume writing and how to get help
Activity #6: Preparing for a job interview
Activity #7: Accommodation in the workplace
Activity #8: Advantage and disadvantages of disclosure


Session 12 - Sexual Health Information

Activity #1: Knowledge of sexual health
Activity #2: Being Sexually Active

Sexual Health Resources