Hydrocephalus Canada

Fetal Surgery for Spina Bifida

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Fetal surgery for myelomeningocele, the most severe form of spina bifida, is a surgical procedure where surgeons open the uterus and close the opening in the baby's back while it is still in the womb. Fetal spina bifida surgery is shown to offer significantly better results than traditional repair after birth.


Spina bifida repaired in-utero: First in-utero surgery in Canada for the treatment of spina bifida a success

TORONTO – In a Canadian first, a team from Mount Sinai Hospital and The Hospital for Sick Children (SickKids) has repaired a form of spina bifida in a fetus at 25 weeks gestation. The baby’s mother, Romeila Son, recovered very well from surgery, and a bouncing baby girl, Eiko, weighing 2.45 kg, was born on August 19 at 36 weeks gestation at Mount Sinai Hospital. Since her birth, Eiko has needed no further intervention for this usually debilitating condition. This is the first case in Canada where the mother has not had to travel to the United States for this specialized surgery.

Dr. Greg Ryan heads Canada’s largest and most experienced fetal therapy program at Mount Sinai Hospital and Dr. James Drake heads Canada’s largest and most established neurosurgical centre for the postnatal repair of spina bifida at SickKids. Working in collaboration with colleagues from Vanderbilt University in Nashville who pioneered the procedure, a team of 24 clinicians led by Drs. Ryan and Drake successfully carried out the 2.5 hour in-utero procedure at Mount Sinai on June 4, 2017. Read more...


NOTE: We will provide PARENT INFORMATION KITS to anyone considering the surgery. 


There is also a private FACEBOOK GROUP of Canadian mom's who have had or are considering Fetal Surgery for Spina Bifida. 
You can find them at https://www.facebook.com/groups/364235644001706/

Expecting & Considering Fetal Surgery for Spina Bifida-US based, however, many Canadian families who have had the surgery are connected to this group as well.
You can see the group athttps://www.facebook.com/groups/FetalSurgeryForSpinaBifida/