Personal Stories Archives - Hydrocephalus Canada

Personal Stories

Beating the Heat with Summer Breathwork by Ingrid...

During July and August, Hydrocephalus Canada will not be facilitating our regular programming with the support groups and yoga. The office remains open, and we are here to answer support […]...

26th June 2025

Read More

Mary’s Musings: Shining A Light On Hydrocephalus & Spina Bifida Awareness Month by Mary Dufton...

June is Hydrocephalus and Spina Bifida Awareness month, so I decided to write about my experience living with both medical conditions. Hydrocephalus is caused by an abnormal build up of […]...

25th June 2025

Read More

Kyleigh Morgan: Living her dream of becoming a nurse By Mary Dufton...

Kyleigh Morgan developed hydrocephalus as an infant from an inoperablebenign brain tumour. After being a patient most of her life, 19-year-oldKyleigh dreams of becoming a registered nurse. She refuses...

27th May 2025

Read More

Kai’s story: Learning to live with uncertainty while trusting her gut Written by Mary Dufton...

Kai Cote only heard of hydrocephalus on medical dramas and thought it only affected infants. However, when she was about 20, she began having double vision, eye misalignment and headaches […]...

22nd April 2025

Read More

Emma’s Story of Strength, Perseverance and Resilience By Mary Dufton...

Twenty-year-old Emma St. Aubin who was born in Niagara Falls Ontario, is a passionate advocate for people who live with hydrocephalus. She is also equally passionate about athletics, having participat...

17th March 2025

Read More

Linda Benard: Always on the Go By Mary Dufton...

Linda Benard was born with spina bifida, but never let it dictate her life or limit her options. The 77-year-old Langdon, Ontario resident has been active her entire life. She […]...

18th February 2025

Read More

Your Devices, Your Rights Petition...

Sign and share. Help, Support and Sign. Join us in calling on the Ontario Government to modernize the Assistive Devices Program and make basic and essential medical equipment accessible for […]...

12th February 2025

Read More

Ersin Omay: Looking on the Bright Side of Life By Mary Dufton...

Ersin Omay was not born with hydrocephalus but developed it after falling from a third-floor balcony at age three. The 49-year-old Mississauga resident loves the outdoors and is an avid […]...

14th January 2025

Read More

Personal Stories

You are not alone. Thousands of Canadians are living with, or supporting someone affected, hydrocephalus or spina bifida. Sharing our experiences brings us closer together, provides valuable insights and inspires us with the courage needed to be our best.

If you would like to share your personal story to help someone feel less alone, we would love to help you. Contact us at [email protected] to find out how.

Read and share these incredible stories of those in our community:

These personal stories are in PDF format and will open in a new tab/window.

Danny and Em rev2020

Read Spotlight Story

Humphreys Interview

Read Dr. Humphrey’s Story

Funding for this website provided by Ontario Trillium Foundation

Charitable Registration No: 10799 9310 RR0001

© 2025 HYDROCEPHALUS CANADA. All Rights Reserved