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Supporting Individuals and Families impacted by Spina Bifida and Hydrocephalus in Canada

We come together in many ways, united by a shared commitment to improving lives Whether you participate in a Hydrocephalus Canada event, advocate for change, or support our mission in other ways, you are making a meaningful difference!
All Fundraising Health Past Events Annual General Meeting Personal Stories More
Cheryl Ebenal: Living life b...

Cheryl Ebenal, who originates from Maidstone, Saskatchewan, ...

25th March 2026
Celebrate Live Dream Walk FA...

🕘 Event Timeline9:30–10:30 AM – Registration & wa...

23rd March 2026
The Challenges of Caregiving...

Like many adult children, Kyle became a caregiver to his agi...

17th February 2026
The Healing Power of Song: D...

Danny Martin-Poitras had a good, unremarkable life. He enjoy...

27th January 2026
Hydrocephalus Canada Announc...

Hydrocephalus Canada is proud to announce the 2025 Hydroceph...

25th January 2026
Alexandra Rego’s Journey t...

Alexandra Rego, who was born with spina bifida, and hydrocep...

25th November 2025
Fill A Box...

...

06th November 2025
Mélanie Héroux: Athlete an...

Mélanie Héroux, who was born with hydrocephalus, is a tire...

21st October 2025
A Sibling Story: Natalie and...

For board member and long-time supporter Natalie Clydesdale,...

24th September 2025
World Hydrocephalus Day...

💙 Join Us on World Hydrocephalus Day – September 20, 20...

09th September 2025
Hayden Korethoski: A Passion...

Born with congenital hydrocephalus, Hayden Korethoski found ...

25th August 2025
Hydrocephalus Canada Annual ...

Notice is hereby given that the Annual General Meeting (AGM)...

12th August 2025
Em Jordan Finds Her Voice by...

Ever since she was a little girl, 20 year old Em Jordan love...

21st July 2025
RESEARCH GRANT PROGRAM 2026...

2026 Hydrocephalus Canada – Research Grant Program Opens A...

30th March 2026
Beating the Heat with Summer...

During July and August, Hydrocephalus Canada will not be fac...

26th June 2025
Mary’s Musings: Shining A ...

June is Hydrocephalus and Spina Bifida Awareness month, so I...

25th June 2025
Get Involved...

Get Involved With Community Events for Hydrocephalus & S...

29th May 2025
Kyleigh Morgan: Living her d...

Kyleigh Morgan developed hydrocephalus as an infant from an ...

27th May 2025
15 years of Jackson’s ...

Jackson’s Hope Fore Hydrocephalus Partner’s With...

07th May 2025
Kai’s story: Learning to l...

Kai Cote only heard of hydrocephalus on medical dramas and t...

22nd April 2025
Emma’s Story of Strength, ...

Twenty-year-old Emma St. Aubin who was born in Niagara Falls...

17th March 2025
Linda Benard: Always on the ...

Linda Benard was born with spina bifida, but never let it di...

18th February 2025
Your Devices, Your Rights Pe...

Sign and share. Help, Support and Sign. Join us in calling o...

12th February 2025
Ersin Omay: Looking on the B...

Ersin Omay was not born with hydrocephalus but developed it ...

14th January 2025
Stress Busting Strategies To...

The holidays are just around the corner. Neighbours have hun...

17th December 2024
Megan, Carson and Jett: Neve...

Megan and Carson Adams had never heard of hydrocephalus unti...

26th November 2024
Meet The Van Heerden Family...

In the serene beauty of Alberta, the Van Heerden family live...

14th November 2024
Looking Through the Lens- Th...

Photo credit Ingrid Exner I have been taking photographs for...

28th October 2024
Reflections on positivity an...

Judy Feeley has had hydrocephalus her entire life but was no...

23rd October 2024
Programs and Services...

...

17th October 2024
Folic Acid...

...

17th October 2024
Understanding Spina Bifida...

...

17th October 2024
Recognizing Shunt Failure...

...

17th October 2024
Understanding Idiopathic Nor...

...

17th October 2024
Understanding Hydrocephalus...

...

16th October 2024
Kerri, Ryleigh, and Olivia: ...

Kerri Chevrier has two young daughters with very different n...

23rd September 2024
Hydrocephalus Canada Charity...

Hydrocephalus Canada Charity Golf Tournament is back on Mond...

10th September 2024
Minutes of the 2023 Annual G...

...

05th September 2024
NHCC Embraces New Advocacy S...

Hydrocephalus Canada, a member of Neurological Health Charit...

27th August 2024
Amber Constable: Passionate ...

Amber Constable was born with spina bifida and hydrocephalus...

26th August 2024
Hugs and Smiles Photo Contes...

Get your camera’s ready! Whether its a selfie or a hug wit...

16th July 2024
Phil Bronsther: Adapting to ...

By Mary Dufton Retired chef and caterer Phil Bronsther has o...

15th July 2024
TROY’S TRAIL 2026 R...

Troy and Annette Chandler are passionate about raising aware...

25th June 2024
Youth Participants for a res...

Email [email protected] or Call 416-425-6220 x 3654 ...

24th June 2024
Study Invitation: Quality In...

Email [email protected] or Call 289-804-6101 to pa...

24th June 2024
Amanda and Meredith: their u...

Twin sisters Amanda and Meredith Cullen have very different ...

24th June 2024
Disability and Sexuality Res...

https://www.youtube.com/watch?v=Sqw5C8SuYGQ&t=92s    ...

13th June 2024
Hydrocephalus Canada Charity...

...

12th June 2024
Troy Chandler: Making Connec...

Troy Chandler was leading a full and busy life when things c...

16th May 2024
Hydrocephalus Canada Charity...

Hydrocephalus Canada Charity Golf Tournament is back on Mond...

16th May 2024
$2500 Scholarship Presented ...

Presented by the amazing Resolute Legal Disability Lawyers, ...

03rd May 2024
Vacation Planning With Child...

Vacations can be exciting, but they can also be stressful, e...

30th April 2024
The Truth About Caregivers...

Caregiving is a demanding and often under recognized role th...

24th April 2024
Fun Stress Release For Careg...

Engage in Creative Activities: Explore your creative side by...

24th April 2024
Becoming A Better Caregiver...

Most importantly, we want to mention we know everyone is doi...

24th April 2024
Combating Caregiver Burnout...

Combatting caregiver burnout involves taking proactive steps...

24th April 2024
How to Spot “Caregiver...

Caregiver burnout is a state of physical, emotional, and men...

23rd April 2024
Caregiver Series: Strategies...

Being a caregiver can be emotionally challenging, especially...

23rd April 2024
Judy’s Recipes: Berry ...

Try out Judy’s amazing berry smoothie to get your morn...

22nd April 2024
A Family’s Story Of Challe...

Ottawa residents Ashley McKellar and Ryan Haynes were full o...

18th April 2024
Join Our Board...

Call for nominations...

15th April 2024
The Art of Healthy Relations...

Building and maintaining healthy relationships is crucial fo...

11th April 2024
Dealing with Anxiety...

...

11th April 2024
Tips for Communicating in th...

...

11th April 2024
Feeling Alone?...

...

11th April 2024
Communication is Always Key...

...

11th April 2024
Brain Health: Discover The I...

Living with spina bifida and/or hydrocephalus means navigati...

26th March 2024
Brain Health: The Importance...

Peer support groups offer invaluable opportunities for indiv...

26th March 2024
20 Minute Resistance Band St...

20 Minute Resistance Band Strength Chair Routine Listen to y...

26th March 2024
20 Minute Low Impact Cardio ...

Low Impact Cardio Seated: Listen to your body and listen to ...

26th March 2024
20 Minute Low Impact Cardio ...

Low Impact Cardio Standing  Listen to your body and lis...

26th March 2024
20 Minute Seated Cardio Work...

Seated Cardio Workout routine: Listen to your body and liste...

26th March 2024
Lisa Robinson: Navigating Li...

Lisa Robinson: Navigating life on her own terms by Mary Duft...

25th March 2024
A Lighthearted Approach To L...

Angie Mintz is self-confident and engaging with a captivatin...

26th February 2024
Rick’s Path to a New Way o...

About thirty years ago, while doing yard work, Rick Harmer f...

26th January 2024
2026 Scholarship Flyers...

The 2026 Dr. E Bruce Hendrick National Scholarship progra...

02nd January 2025
Dr. E Bruce Hendrick Nationa...

The Scholarship Program is Available Nationally to Students ...

02nd January 2026
Luciana Spring Mascarin Burs...

The Bursary Program is open. The 2026 Luciana Spring Mascari...

02nd January 2026
Ghofran Alyass’ Story of H...

By: Mary Dufton Ghofran Alyass’ experience of being born w...

06th December 2023
Friendships Like No Other: T...

By: Mary Dufton Friendships are key to our physical and ment...

13th November 2023
Frequently Asked Questions o...

Below is a document that provides answers to frequently aske...

09th November 2023
Nancy Dickinson Personal Sto...

By: Nancy Dickinson                I am a mother wit...

01st November 2023
Ingrid Exner: Adaptive Yoga ...

By: Mary Dufton Since adolescence, Ingrid Exner has practise...

24th October 2023
Free Webinar – Idiopat...

Idiopathic Normal Pressure Hydrocephalus (INPH) 101- The Bas...

18th October 2023
My Husband’s Journey w...

By: Lorraine Newlove My husband Frank’s journey began in t...

05th October 2023
Open Letters to Mom...

By: Amberlea Wouda This is Claire. Our beautiful daughter. O...

05th October 2023
Facing Everyday with Strengt...

Facing Everyday with Strength and Courage Karen Howard is su...

06th October 2023
Support & Focus Vital t...

By: John Thompson I am a 57-year-old with adult onset Normal...

05th October 2023
Gilda Katz: Five Years After...

I hope this article will offer some encouragement and guidan...

05th October 2023
Laura Gattensby: A New Life ...

In December of 2016 at the age of 46 I was supposed to begin...

05th October 2023
AGM Recap 2023...

Notice is hereby given that the Annual General Meeting (AGM)...

27th September 2023
Hydrocephalus Canada’s...

Hydrocephalus Canada is proud to announce our 2 newest volun...

18th September 2023
Bonnie Charbonneau: A Lifeti...

By: Mary Dufton Bonnie Charbonneau has been involved with Hy...

31st August 2023
June Awareness 2023...

Raise Awareness > SB&H Awareness 2023 June is Spina B...

14th August 2023
Emma’s Empowering Stri...

We are delighted to spotlight Emma St. Aubin, an extraordina...

24th July 2023
Young Changemakers: EmmaR...

We are celebrating young changemakers who have become influe...

21st July 2023
Troy’s Trail- Celebrat...

In this donor profile, we proudly highlight the incredible j...

21st July 2023
Host Your Own Fundraising Ex...

The world is a very different place right now. But one thing...

19th July 2023
Hydrocephalus Art Contest 20...

Events > Art Contest Hydrocephalus Art Contest 2023 Thank yo...

12th July 2023
Ana-Maria’s Story of E...

by Mary Dufton Ana-Maria Oproescu has always been fascinated...

07th July 2023
Meaghen Bobryk: A Tale of Tw...

I’ve always loved wrestling; I love the passion and the s...

06th July 2023
#SBHTogether: Continue The C...

Raise Awareness > SB&H Awareness 2023 Help Us Continu...

30th June 2023
Nicole Neeson- A Life of Tra...

by Mary Dufton Forty-two-year-old Torontonian Nicole Neeson ...

22nd June 2023
Angela Psimenatos: The Story...

by Mary Dufton Forty-two-year-old Ottawa resident Angela Psi...

22nd June 2023
Public Review of Government ...

Dear stakeholders, The Government of Canada is officially la...

16th June 2023
Sylvia and Bob Langlois – ...

by Mary Dufton Sylvia and Bob Langlois’ son Andrew was bor...

05th June 2023
Free Webinar – Skin an...

Skin and Foot Care Tips & Problem Prevention Have questi...

01st June 2023
Management and Monitoring of...

Events > Free Webinar Management and monitoring of neurogeni...

29th May 2023
Bowel & Bladder Managem...

Bowel & Bladder Management – Ask the Experts  Bo...

10th May 2023
Chronic Pain information ses...

Events > FREE Webinar Chronic Pain information session Re...

01st May 2023
Cam Jenkins: Journey to phys...

Cam Jenkins: Journey to physical and mental wellness by Mary...

22nd April 2023
First Pediatric Pain Managem...

Health > Press Release: Pediatric Pain Standard First Pediat...

05th April 2023
NTDs and Hydrocephalus: The ...

FREE Webinar – NTDs and Hydrocephalus: The Challenges ...

02nd April 2023
Bowel & Bladder Managem...

Bowel & Bladder Management – Ask the Experts Join ...

18th March 2023
What are hydrophilic cathete...

Health > Tips For Caregivers What are hydrophilic catheters?...

16th March 2023
FREE Sibling Workshop...

Are you a sibling of a loved one with spina bifida and/or hy...

31st January 2023
Janet and Gordon Baker – S...

Janet and Gordon Baker – Sharing Fond Memories of the Earl...

27th January 2023
50 Years of Leaders...

50 Years of Leadership: Our Past and Current Board Chairs  ...

25th January 2023
Silver Lining: Our First 25 ...

Silver Lining: Our First 25 Years Hydrocephalus Canada’s s...

24th January 2023
The Unstoppable and Unflappa...

The Unstoppable and Unflappable Sally Thomas by Mary Dufton ...

19th January 2023
Melody Rose – Helping to s...

Melody Rose: Helping to save Mother Earth– one person at a...

23rd November 2022
Travelling as a Catheter use...

Being well prepared is a good first step for a carefree holi...

01st November 2022
Danny Lamb: A Man of Many Ha...

Danny Lamb: A Man of Many Hats by Mary Dufton Danny Lamb wea...

04th October 2022
Lisa Harper: The Power of Se...

Lisa Harper: The power of self-advocacy by Mary Dufton Lisa ...

10th August 2022
Meet Laura Gattensby...

Meet Laura Gattensby In December of 2016, at the age of 46, ...

25th July 2022
Jeff Wilkinson: Living his ...

Jeff Wilkinson: Living his Dreams by Mary Dufton Sixty-six-y...

13th June 2022
Wrap Up Of Hydrocephalus Can...

Notice is hereby given that the Annual General Meeting (AGM)...

15th June 2024
HC Receives OTC Grant 2021...

HC receives Ontario Trillium Foundation Grant to Rebuild & R...

01st June 2021
First SBH Newsletter 1972...

The subject of the Feoruary meeting was projects......

06th July 2021
Experience of Working, Volun...

Are you a youth or young adult who is currently working, vol...

06th July 2021
Judy Feeley CPPD Article...

My name is Judy. I was born with congenital hydrocephalus an...

26th May 2021
HC HB Youth Webinar Series...

Hydrocephalus Canada and Holland Bloorview Kids Rehabilitati...

23rd September 2021
Fill A Box...

...

06th November 2025
Get Involved...

Get Involved With Community Events for H...

29th May 2025
15 years of Jackson’s ...

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07th May 2025
Meet The Van Heerden Family...

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14th November 2024
Hydrocephalus Canada Charity...

Previous ...

10th September 2024
TROY’S TRAIL 2026 R...

Join The Walk Here Donate to Tr...

25th June 2024
Hydrocephalus Canada Charity...

...

16th May 2024
Emma’s Empowering Stri...

We are delighted to spotlight Emma St. A...

24th July 2023
Young Changemakers: EmmaR...

We are celebrating young changemakers wh...

21st July 2023
Troy’s Trail- Celebrat...

In this donor profile, we proudly highli...

21st July 2023
Hydrocephalus Canada Announc...

Hydrocephalus Canada is proud to announc...

25th January 2026
Beating the Heat with Summer...

During July and August, Hydrocephalu...

26th June 2025
Your Devices, Your Rights Pe...

/*! elementor - v3.5.5 - 03-02-2022 */.e...

12th February 2025
Looking Through the Lens- Th...

...

28th October 2024
Programs and Services...

/*! elementor - v3.5.5 - 03-02-2022 */ ...

17th October 2024
Folic Acid...

/*! elementor - v3.5.5 - 03-02-2022 */.e...

17th October 2024
Understanding Spina Bifida...

/*! elementor - v3.5.5 - 03-02-2022 */ ...

17th October 2024
Understanding Idiopathic Nor...

/*! elementor - v3.5.5 - 03-02-2022 */.e...

17th October 2024
Understanding Hydrocephalus...

/*! elementor - v3.5.5 - 03-02-2022 */.e...

16th October 2024
NHCC Embraces New Advocacy S...

Hydrocephalus Canada, a member of Ne...

27th August 2024
Hugs and Smiles Photo Contes...

/*! elementor - v3.5.5 - 03-02-2022 */ ...

16th July 2024
Emma’s Empowering Stri...

We are delighted to spotlight Emma St. A...

24th July 2023
Young Changemakers: EmmaR...

We are celebrating young changemakers wh...

21st July 2023
Troy’s Trail- Celebrat...

In this donor profile, we proudly highli...

21st July 2023
Hydrocephalus Canada Annual ...

The Hydrocephalus Can...

12th August 2025
Minutes of the 2023 Annual G...

/*! elementor - v3.5.5 - 03-02-2022 */ ...

05th September 2024
Wrap Up Of Hydrocephalus Can...

https://youtu.be/nhA-0xoV2Ag ...

15th June 2024
AGM Recap 2023...

Annual General Meeting > ...

27th September 2023
Cheryl Ebenal: Living life b...

Cheryl Ebenal, who or...

25th March 2026
The Challenges of Caregiving...

Like many adult children, Kyle becam...

17th February 2026
The Healing Power of Song: D...

Danny Martin-Poitras had a good, unr...

27th January 2026
Alexandra Rego’s Journey t...

Alexandra Rego, who was born ...

25th November 2025
Mélanie Héroux: Athlete an...

Mélanie Héroux, who ...

21st October 2025
A Sibling Story: Natalie and...

For board member and long-time suppo...

24th September 2025
World Hydrocephalus Day...

💙 Join Us on World Hydrocep...

09th September 2025
Hayden Korethoski: A Passion...

Born with congenital h...

25th August 2025
Em Jordan Finds Her Voice by...

Ever since she was a little girl, ...

21st July 2025
Beating the Heat with Summer...

During July and August, Hydrocephalu...

26th June 2025

 

BH Conference 2026 takes place in Montréal, Canada, October 15–17, 2026, bringing together the global spina bifida and hydrocephalus community under the theme “A Lifetime of Experiences: From Preconception to Ageing.”

Healthcare professionals, researchers, families, and advocates worldwide will connect to share knowledge and advance lifelong, inclusive care.

Learn more and register at www.sbhconference2026.com/en • Air Canada promo code: C9NZGE91