Supporting Individuals and Families impacted by Spina Bifida and Hydrocephalus in Canada

We come together in many ways, united by a shared commitment to improving lives Whether you participate in a Hydrocephalus Canada event, advocate for change, or support our mission in other ways, you are making a meaningful difference!

This Canada-wide scholarship supports post-secondary students living with hydrocephalus and spina bifida who are currently enrolled or starting college, university, or trade programs in September. It celebrates ambition, resilience, and future goals while helping students move confidently toward their education and career dreams across Canada.

This Kitchener-based bursary supports students living with spina bifida and/or hydrocephalus living in Windsor-Essex and Chatham-Kent, Ontario, Canada. The bursary provides financial support for post-secondary education. Recognizing ambition, resilience, and future goals while helping recipients pursue meaningful opportunities in their communities.



Free Webinar: Your Right to Accommodation at Work

Join Hydrocephalus Canada on February 17 at 7:00 PM EST for a practical webinar on disability-related workplace accommodations. Presented by Lila Refaie, this session explains employee rights, the accommodation process, and how to advocate for accommodations at work.

Who Should Attend

• Employees and job seekers with disabilities
• Individuals living with hydrocephalus and/or spina bifida
• Families and caregivers
• Service providers and community organizations
• Anyone interested in workplace accessibility and disability rights

 

🔗 Register: https://us06web.zoom.us/webinar/register/WN__k-EFTnLTSSRRE9yVyST9A#/registration


Hydrocephalus Canada is proud to announce the 2025 Hydrocephalus Canada Research Award recipients. Two $20,000 grants have been awarded to Dr. Alfonso Fasano (Toronto Western Hospital, UHN) and Dr. Amy McPherson (Holland Bloorview Kids Rehabilitation Hospital) to advance research in normal pressure hydrocephalus rehabilitation and digital connection for youth with spina bifida and hydrocephalus. To read more about this exciting new and the plans for each grant click here. 



 

BH Conference 2026 takes place in Montréal, Canada, October 15–17, 2026, bringing together the global spina bifida and hydrocephalus community under the theme “A Lifetime of Experiences: From Preconception to Ageing.”

Healthcare professionals, researchers, families, and advocates worldwide will connect to share knowledge and advance lifelong, inclusive care.

Learn more and register at www.sbhconference2026.com/en • Air Canada promo code: C9NZGE91