Hydrocephalus Canada


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SB&H believes that students with sb/h are entitled to be educated in the most enabling environment. Further, the choice of an appropriate learning environment must be made on an individual basis recognizing the uniqueness of each person. This can only be accomplished by ensuring that a full range of placement options is available. As well, all appropriate supports must be supplied wherever a student is placed. These include:

  • access (ramps, toilets, privacy for toileting, etc.)
  • assistive devices (seating, computers, etc.)
  • instructional services (specialized teaching, teaching assistants, counselling, etc.)

We also believe that parents, and the student, where appropriate, should be full and active partners in educational planning.

Spina bifida and hydrocephalus are complex conditions. Therefore, appropriate information from all sources, parent, school and other professionals must be shared and utilized in planning for the student's placement and program.

SB&H is involved on many levels to ensure that students with sb/h have the best chance to succeed in school. We have a representative on the Minister's Advisory Council on Special Education. Through our involvement in the Kid's Coalition, we have a forum for stakeholders to develop policy, common positions, etc. to benefit children and youth with special needs. We are also members of the Provincial Association Advisory Committee (PAAC) on SEAC. This is an opportunity for SB&H to share ideas and addresss common concerns related to Special Education Advisory Committees (SEAC's) across Ontario. PAAC works to ensure that all parents play a vital role in the education of their children.

It is crucial to the success of students with sb/h that we keep these issues in the forefront of any election. Candidates need to be made aware of the unique learning needs of students with spina bifida and/or hydrocephalus, and the necessity of ensuring that these needs are consistently being met. SB&H is here to help. Contact us with your concerns or questions related to special education in Ontario at provincial@sbhao.on.ca

For samples of Individual Education Plans (IEP) visit http://www.edugains.ca/newsite/SpecialEducation/index.html

For detailed information about what you need to know about Individual Education Plans (IEP) visit http://www.oise.utoronto.ca/adaptivetech/Special_Ed/IEP/

Special Education Advisory Committee (SEAC)

Are you interested in becoming an advocate for children with special needs? SB&H recruits, trains and supports volunteer members of the Association to be representatives on Special Education Advisory Committees (SEAC) of District School Boards throughout the province.

Make your voice heard and make a difference!


Under the Education Act, all District School Boards are required to establish a Special Education Advisory Committee (SEAC), which may make recommendations to the Board concerning any matter affecting the establishment, development and delivery of Special Education Programs and Services for students with special needs.

SEAC membership includes:

  • Twelve volunteers representing local parent associations
  • Alternates for each volunteer
  • Trustees of the Board
  • Representation for Indian pupils
  • Member-at-large
  • Superintendent of the District School Board

Eligible members for SEAC are required to:

  • Reside within the jurisdiction of the Board they represent
  • Be a public or separate school elector
  • Be a Canadian citizen
  • Not be employed by the Board

Terms of Appointment

Names of qualified candidates are presented by SB&H to the District School Board for appointment consideration. Upon acceptance of the nomination by the School Board the SB&H SEAC volunteer will be appointed for a 4 year term.  Next term is December 2014 to November 2018.

SB&H SEAC Volunteer Responsibilities

  • Be knowledgeable of SB&H’s policies and positions concerning Special Education matters
  • Effectively represent the needs of SB&H children and youth and bring concerns to SEAC
  • Act as a resource for parents of children with spina bifida and/or hydrocephalus concerning educational issues
  • Attend 10 meetings annually
  • Work collaboratively with all SEAC members to effectively respond to the needs of all children and you with special education needs
  • Report to SB&H regarding SEAC issues and concerns

Children and youth with spina bifida and/or hydrocephalus face many barriers to education.

SB&H needs representatives throughout the province of Ontario. If you would like to be nominated by SB&H for a position on your local school board SEAC please contact us at 1-800-387-1575 or provincial@sbhao.on.ca