Events

📅 Date: April 9 at 7:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/OZlXYE3iRWK3qPnzEnZifw Event Description:A supportive space for youth and young adults to connect and share their experiences navigating diagnosis, treatment, and growing independence. This session focuses on identity, confidence, and building community with others who understand the journey.

📅 Date: April 23 at 6:30–8:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/KNZhRoljROaBTwlXIyV0BA This months topic:A conversation for adults living with spina bifida about how health needs evolve over time. Topics include managing transitions in care, advocating within the healthcare system, and navigating independence and long-term wellness. We are always open to your opinions on support groups topics. […]

📅 Date: April 29 at 6:30–8:00 pm EDT🔗 Register: https://us02web.zoom.us/meeting/register/VGUonhd5RryG7cXUY82HEg This Months Topic:This session focuses on the ongoing journey of living with hydrocephalus or NPH. From diagnosis to treatment and beyond. Share experiences, ask questions, and discuss strategies for managing long-term health and quality of life.